MS: Our Story

On February 15, 2012, in MS Stories, by Dave Schwarber

Circumstances are circumstances. We all have trials. And we all choose how to respond. This is one such story.

My story.

Our story.

AT FIRST SIGHT

Barb and I met at an office party in 1976.

It was love at first sight (at least for me☺).

Barb was very athletic. The day after we met, we had a company picnic. I pictured myself as somewhat of an athlete also, but in the softball game that day, she hit a ball so hard she put me on my butt (although I still tell her it was wet and I slipped)☺. It seemed that everything we did, we did together. We loved hiking and softball and golf and canoeing – and even snake hunting. Anything in the outdoors was fair game.

We got married in 1978, bought a house in 1980, and had our first child, a daughter, in April of 1982. We still loved the outdoors, and spent as much time as we could playing sports, camping, or just relaxing in the back yard. In 1984 we had our second child, a son, and life couldn’t have been more perfect.

That’s when our story really begins.

I was on a fishing trip with the guys shortly after my son was born, when I got the call. Barb was having trouble with her vision, and had gone to our ophthalmologist. His diagnosis: retro bulbar optic neuritis, a common indicator of Multiple Sclerosis. A week later, after a battery of tests, the diagnosis was conclusive.

Barb had multiple sclerosis.

It sounded sinister. Final. Neither of us knew much about the disease. But we learned quickly. MS affects over 450,000 people in the US, and over 2.5 million worldwide. It has no known cause; no standard progression; no firm prognosis. You never know what today – or tomorrow – will bring.

Barb started off with the most common form of the disease, relapsing/remitting MS. In this phase, the disease follows a course of attacking, then subsiding, with the patient recovering almost fully after every exacerbation. It could show itself in any number of ways, including, but not limited to extreme fatigue, muscle spasms, sight problems, weakness in the extremities, lack of control over the muscles, etc. The good news was that, almost every time, after a few days treatment with steroids, Barb would bounce back to her old self.

Life went on this way for about 15 years or so.

Some years were better than others, but we still hiked, played golf, camped, and did the things we loved as often as possible. Then, in a twist of fate, several things happened in a few months. Barb stopped bouncing back from her exacerbations. MS had reared its ugly head, and her disease turned more sinister. She now had the next stage of the disease, termed secondary progressive.

In the secondary progressive phase, instead of bouncing back to normal after an exacerbation, the person only recovers partial function. So they basically go into a steady decline. They may recover 85% after an episode, then 85% after the next one, and so on. It’s a steady downward progression. Barb has been in that stage for the past 6 years or so. She’s gone from an athlete to someone who sometimes struggles to dress herself in the morning.

Barb has lost some function. We no longer play ball, hike, golf, or do anything requiring legs. But we still enjoy the outdoors.

And we still enjoy each other.

And she is still my idol.

She refuses to let her medical condition control her life.

If she can’t walk, she uses a walker.

Or a scooter.

Or a wheelchair.

Or she just crawls.

But she NEVER QUITS.

Barb  refuses to let MS control her life.

Hers is only one story. There are many such. Their point is that life goes on. Bad things sometimes happen. We all have trials. And we all choose how to respond. We’ve faced our share of adversity, as most people do. Our only daughter was diagnosed with a much more aggressive form of MS just 5 years ago, when she was 23.

Barb & Amy Schwarber

Barb still goes on with life. As does Amy. As do many people with MS. There are a lot of heroes out there, but Barb will always be mine!

Do you have a story you’d like to share? Contact me.

– Dave

NEVER QUIT – FIGHT MS





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